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Hi Again! I'd like to express my heartfelt gratitude for supporting my first half Ironman Race in 2021 on behalf of the CGD Association of America (CGDAA), a nonprofit organization that helps patients and female carriers of X-linked Chronic Granulomatous Disease (CGD). Together, we surpassed my goal of $5,000 and raised $6,003!

This year, I am doing a Full Iron Man Race on September 17th, 2022 in Maryland, and I hope to raise even more money than we did last year! Let's see if we can do it!

I have been working with the CGD community for three years, and I continue to be humbled by the strength and perseverance of these patients, caregivers, and families. Their bravery, passion, and resilience is what has given me the strength to take on this fundraising challenge for the CGDAA. I am beginning my training now, and I will keep you posted as we get closer to the race date.

Please join me in helping support their journeys as they navigate through this rare, life-altering disease.

Thank you so much!

Best,
Shane

Shane's race is on September 17, 2022!

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The CGD Association of America is committed to advocating on behalf of patients, carriers, and families by providing clear, accurate, and independent news and information about CGD and advancing CGD research.